Propionic Acidemia Foundation Logo

PROPIONIC ACIDEMIA FOUNDATION

Translation


  • ABOUT PA
    • FAQ
    • Diagnosis
    • Nutrition
    • Treatments
    • Medical Publications
    • Glossary
  • RESOURCES
    • Family Stories
    • Newsletters
    • Patient Education and Support
    • Warriors Birthday Club
    • COVID-19
  • RESEARCH
    • Research
    • Research Studies
    • Grant Application
    • Clinical Trials
    • Medical Publications
    • Biobank
    • PA Registry
  • ABOUT PAF
    • Mission
    • Board of Directors
    • Medical Advisory Board
    • Committees
    • Program Accomplishments
    • Financials
    • Contact Us
    • Contact form in Spanish
    • Medical Providers Contact Form
    • Disclaimer & Privacy Policy
  • CONFERENCES
    • 2023 July 21-22 Conference
    • 2023 March 4 Conference
    • 2022 Conference
    • 2021 Conference
    • PA Fun Time with Shayna
    • 2020 PAF Virtual Family Day
    • 2020 PA Family Day Postponed
      • Schedule
      • Register
    • 2018 Warrior Wisdom Conference
      • Agenda
      • Hotel and transportation
      • Resources
    • 2017 Warrior Wisdom Conference
      • 2017 Warrior Wisdom Conference Presentations
    • 2013 PAF Education Conference
    • 2012 PAF Education Conference 
    • 2010 PAF Education Conference
    • PA Family Days
  • NEWS
    • NEWS & EVENTS
  • SUPPORT PAF
    • Marathon 2023
    • Donate Now
    • Donate Forms
    • Become a Sponsor
    • Host a Fundraiser
    • Get Involved
    • Fundraising archives
      • Marathons and More
      • Corn Hole Tournament
      • 2016 DHS Events
  • Menu

Tag Archives: propionic acidemia bereavement support

Bereavement Support

Bereavement Support

Many of the links below have websites, local chapters, and facebook groups.  The links have been recommended by members of our PA community.  If you would like to speak to a family that has lost a family member with propionic acidemia, please contact us a [email protected]

Compassionate Friends

Grief.com because love never dies

Helping Parents Heal

Now I Lay Me Down to Sleep

Silent Grief – Child Loss Support  – Facebook Group

MISSION

Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

WEBSITE IS MAINTAINED BY PAF.

Disclaimer and Privacy Policy
© 2023 Propionic Acidemia Foundation. All rights reserved.

LOCATION AND CONTACT

PO Box 151
Deerfield, IL 60015-4421
[email protected]
U.S. Toll Free 1-877-720-2192
Propionic Acidemia Foundation is a non-profit 501(c)3 organization.