PAF Warrior Wisdom Conference Agenda

Nationwide Hotel and Conference Center

100 Green Meadows Drive South

Lewis Center, OH

Friday, October 19th

6:00PM-9:00PM          Registration, Welcome Reception,  Cash Bar*.

Edgewater Dining Room

Saturday, October 20th

7:00AM-8:15AM         Buffet Breakfast for guests staying at the Hotel.   Exhibitor Set-up

8:00AM-8:30AM         Registration

Grand Ballroom 1

8:30AM-9:00AM         Welcome – Opening Remarks and Introductions, Jill Chertow, President PAF

9:00AM-9:30AM         “Family Panel”

9:30AM-10:00AM       “PA Game”, Moderated by Keiko Ueda, MPH, RD

10:00AM-10:30AM     Break/Visit Exhibitors

10:30AM-11:00AM     “Plain Talk about Propionic Acidemia: Update from Ohio’s Amish Country”, Olivia Wenger, MD

11:00AM-11:45AM     “Natural History, Physiology, Microbiome and Biochemistry Studies of Propionic Acidemia”,                                                                     Oleg Schchechlokov, MD

11:45AM-12:00noon   Questions/Discussions

12:00noon-1:00PM     Lunch/Group Photo

Grand Ballroom 3

1:00PM-1:30PM          “Multi-Disciplinary Protocol for Liver Transplant in Propionic Acidemia”,

Grand Ballroom 1        Jodie M. Vento, MGC, LCGC

1:30PM-1:45PM           Discussion/Questions

1:45PM-2:15PM          “Nutritional Intake Recommendations for Propionic Acidemia: Evidence and                                                                                               Consensus Based SERN-GMDI Management Guidelines” Elaina Jurecki, MS, RD

2:15PM-2:30PM          Discussion/Questions

2:30PM-3:00PM          Break/Visit Exhibitors

3:00PM-3:30PM          “Rationale behind changes in the nutritional management of PA/MMA”                                                                                                           Irini Manoli, MD, PhD

3:30PM-3:45PM          Questions/discussions

3:45PM-4:00PM          “PROP Nutritional Guidelines Tool Kit Development” Keiko Ueda,  MPH, RD

4:00PM-5:00PM           Questions/Wrap Up

5:30PM-9:00PM          Dinner/Networking Cash Bar*

Grand Ballroom 3

Sunday, October 21, 2018

7:00AM-8:30AM        Breakfast for guests staying at the Hotel.

7:00AM -noon             Run or cheer on the PA Runners in the Nationwide Children’s Hospital                                                                                                     Marathon – stop by PAF table for information.

Children’s room will be open 10:30AM – 4:00PM in Grand Ballroom 4.

* Hotel guests over 21 in the room block will receive 2 drink tickets per night that can be used at the Cash Bar.

Speakers, topics, and time slots subject to change.   Last updated 10/16/18