Abbott Nutrition Formula Update: Metabolics Update 4.24.23 Patients
New and Upcoming Events
June 30, 2023 Panda Express Fundraiser
Saturday, July 22, 2023 – PA Education Conference – “Heart to Heart” – registration is open
November 2023 – NY Marathon PA Runners will be running to raise money for PAF
Fall stories/articles due August 15th, 2023. Please email to [email protected] Please register with PAF if you would like to receive the newsletter by mail or email or update your contact information.
Due October 1, 2023 – For questions, contact [email protected]
PA International Patient Registry
The PA International Patient Registry provides a way for PA patients and families worldwide to improve the understanding of the disorders and accelerate research by reporting information about how the disorder affects them. The Registry is itself an IRB-approved research project and the data collected will help characterize the condition of people living with PA. You can find out more on www.paregistry.org
PARunners Pounding the Pavement for PA
Join the PAF Pounding the Pavement for PA team or start your own! Run in any race, around your block, or become a “virtual runner” Contact Brittany Smith for more information at [email protected] . Check out events to follow our progress.