Hosted by Propionic Acidemia Foundation and The Community Health Clinic
The Community Health Clinic 730 East North Street, Shipshewana, IN 46565
Saturday, October 19, 2024
AGENDA
| 8:30-9:00 AM | Registration / Vendors Open / Breakfast |
| 9:00-9:15 AM | Welcome/Introductions |
| 9:15-10:00 AM | Propionic Acidemia Overview – Zineb Ammous, MD, FACMG, The Community Health Clinic |
| 10:00-10:30 AM | Break – visit our sponsors |
| 10:30-11:15 AM | Understanding the pathogenesis of cardiac complications in PA patients – Joshua Keith Meisner, MD PHD, University of Michigan Health |
| 11:15-12:00 PM | Diet and supplements in PA |
| 12:00-1:00 PM | Lunch/ Small Group Discussion |
| 01:00-1:45 PM | Liver transplantation in PA, Kyle Soltys, UPMC |
| 1:45-2:30 PM | Heart transplantation in PA, Anthony Zaki, MD | Cleveland Clinic |
| 2:30-3:00 PM | Break – visit our sponsors |
| 3:00-3:45 PM | New therapies/research in PA, Charles P. Venditti MD, PhD, National Human Genome Research Institute |
| 3:45-4:00 PM | Wrap up – Questions |
* Program subject to change
A limited number of no-cost Echocardiograms and EKGs for the patients and families with PA will be available.
To schedule, contact Daniela at 717-925-8300.
REGISTRATION
Registration is free for affected individuals, their families, students, residents, and fellows. Industry attendees are $500 per attendee. Please contact us if you have any questions.
TRAVEL
By Plane: South Bend is the closest airport (around 1 hour to the clinic), Chicago airports are 2.5 hours away. Grand Rapids and Fort Wayne airports are 1.5 hours away.
HOTEL RECOMENDATIONS
Van Buren Hotel (Shipshewana) – *CHC Special Rate
Blue Gate Garden Inn (Shipshewana)
GOLD SPONSOR
SILVER SPONSOR
