Amber B. – 21 years old – updated February 2017Amber B.

Amber is a very happy person, even when she does not feel good, she is always smiling. She loves country music; Luke Bryan is her favorite.  She will be graduating from high school in May of 2017 and will begin a day program at a local training center with her friends.  The last few years her health has been up and down with her dealing with c-diff, DVT (blood clot) in her leg, diabetes, metabolic strokes, and long QT. But, through it all she is a fighter and has bounced back well and quickly. She functions at a 4-5-year-old level, but is still making progress every day.  She is an amazingly strong person who gives me strength every day.


Amber's story propionic acidemia Hi my name is Amber, I am 12 years old and I am in 7th grade at Chestnut Log Middle School.  I have PA and I’m ok with it.  My favorite thing to do is listen to country music.  My favorite artist, right now, is Carrie Underwood.  I love to sing with her.  I love to eat anything that does not eat me first.  My favorite foods are spaghetti with marinara sauce, brocolli, and french fries.  I eat and drink everything by mouth, including my formula.  I kinda like the flavor of it.  I do have significant developmental delays, but I am very happy.  I have cool hearing aids, they are blue and white, and I just started wearing glasses.  Not too bad either.  I  have not been in the hospital for about 3 years now, I hate the hospital, but they give you cool stuff while you are there, like toys and games, my favorite thing to do in the hospital is play bingo, I am very good at it.

I have a little sister, Tiffany, she has PA too.  To me that is great, because I am not alone, she has to drink the formula too and get sticks too. It makes me feel better to have her there with me at the doctor’s office.

God Bless You,
Amber B.
Georgia, United States