PA FAMILY DAY – POSTPONED
9:00am – Guest arrival, visit vendor tables, get coffee or fruit
9:25am – Welcome & Introductions, Jared Beasley, CHC Executive Director
9:30am – PA: The knowns and the unknowns – CHC experience, Dr. Zineb Ammous, CHC Clinical Geneticist
9:50am – PA Natural history study, Dr. Oleg Shchelochkov, NIH
10:20am – Patient experience in research, NIH
10:40am – Research: Participation Matters, Brittany Smith, Propionic Acidemia Foundation Treasurer
10:50am – Propionic Acidemia Foundation, Jill Chertow, Propionic Acidemia Foundation President
11:00am – Q&A panel
11:45am-2:00pm – Lunch, fellowship, visit vendor tables, testing
*The schedule is tentative and may be subject to change.
THANK YOU ALL FOR REGISTERING – WE WILL LET YOU KNOW WHEN WE HAVE A NEW DATE.