Ordre du jour de la conférence PAF Warrior Wisdom,,en,Ordre du jour de la conférence PAF Warrior Wisdom,,en

Nationwide Hotel and Conference Center

100 Green Meadows Drive South

Lewis Center, OH

Friday, 19 octobre,,en,12 octobre,,en,radio radio-498 label_first par défaut,,en,19 octobre,,en,12 octobre,,en,radio radio-498 label_first par défaut,,en

6:00PM-9:00PM Registration, Welcome Reception, Cash Bar*.

Edgewater Dining Room

Saturday, October 20th

7:00AM-8:15AM Buffet Breakfast for guests staying at the Hotel. Exhibitor Set-up

8:00AM-8:30AM Registration

Grand Ballroom 1

8:30AM-9:00AM Welcome – Opening Remarks and Introductions, Jill Chertow, President PAF

9:00AM-9:30AM “Family Panel”

9:30AM-10:00AM “PA Game”, Moderated by Keiko Ueda, MPH, RD

10:00AM-10:30AM Break/Visit Exhibitors

10:30AM-11:00AM “Discuter sur l'acidémie propionique,,en,Mise à jour du pays amish de l’Ohio.,,en,Olivia Wenger,,en,Discuter sur l'acidémie propionique,,en,Mise à jour du pays amish de l’Ohio.,,en,Olivia Wenger,,en: Update from Ohio’s Amish Country”, Olivia Wenger, MD

11:00AM-11:45AM “Natural History, Physiology, Microbiome and Biochemistry Studies of Propionic Acidemia”, Oleg Schchechlokov, MD

11:45AM-12:00noon Questions/Discussions

12:00noon-1:00PM Lunch/Group Photo

Grand Ballroom 3

1:00PM-1:30PM “Multi-Disciplinary Protocol for Liver Transplant in Propionic Acidemia”,

Grand Ballroom 1 Jodie M. Vento, MGC, LCGC

1:30PM-1:45PM Discussion/Questions

1:45PM-2:15PM “Nutritional Intake Recommendations for Propionic Acidemia: Evidence and Consensus Based SERN-GMDI Management Guidelines” Elaina Jurecki, MS, RD

2:15PM-2:30PM Discussion/Questions

2:30PM-3:00PM Break/Visit Exhibitors

3:00PM-3:30PM “Rationale behind changes in the nutritional management of PA/MMA” Irini Manoli,,en,Irini Manoli,,en, MD, PhD

3:30PM-3:45PM Questions/discussions

3:45PM-4:00PM “PROP Nutritional Guidelines Tool Kit Development” Keiko Ueda, MPH, RD

4:00PM-5:00PM Questions/Wrap Up

5:30PM-9:00PM Dinner/Networking Cash Bar*

Grand Ballroom 3

Sunday, October 21, 2018

7:00AM-8:30AM Breakfast for guests staying at the Hotel.

7:00AM -noon Run or cheer on the PA Runners in the Nationwide Children’s Hospital Marathon – stop by PAF table for information.

Children’s room will be open 10:30AM – 4:00PM in Grand Ballroom 4.

* Hotel guests over 21 in the room block will receive 2 drink tickets per night that can be used at the Cash Bar.

Speakers, topics, and time slots subject to change. Last updated 10/16/18

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