Propionazidämie Foundation

FY 2013-2014 Annual Report

1963 McCraren Road

Highland Park, IL 60035

MISSION: Die Propionazidämie Stiftung zu finden verbesserte Behandlungen und eine Heilung für Propionazidämie durch die Finanzierung von Forschung und Bereitstellung von Informationen und Unterstützung für Familien und medizinischen Fachleuten gewidmet.

VISION: To create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.


FINANCIAL REPORT

Revenue:

Contributions: $62,042

Interest Income: $124

In Kind Donations: $724

Total Revenue: $62,890

Expenses:

Research Grants/Registry: $31,398

Programs & Outreach: $862

Printing (in-kind): $724

Fundraising: $621

Management & General Expenses: $1,241

Total Expenses: $34,846

Cash Assets 8/1/2013: $117,370

Cash Assets 7/31/2014: $145,413

 

Note: Off $1 due to rounding

PROGRAM ACCOMPLISHMENTS

Forschung: Grant Disbursement:

  • $28,697 Loren Pena, M.D., PhD., Duke University, Durham, NC

“A prospective study of biochemical parameters reflective of metabolic

control in propionic acidemia”

Outreach:

  • Distributed fall and spring newsletters to affected families, clinicians, and donors

BOARD OF DIRECTORS/OFFICERS

Jill Chertow Franks, President
Angela Waits, Sekretär
Patricia K. Yeary, Schatzmeister
Sheila Buice
Eric McAdams
Nicole Russell
Ann Marie Young

Board disclosure:
Donations made by board members totaled $704