患者教育和支持
- 丙酸血症护理笔记本 – 英语PDF
- 丙酸血症护理笔记本 – 西班牙PDF
- 建立自己的关怀笔记本 – 美国儿科学会
- 丙酸血症基金会宣传册 – 英语PDF
- 丙酸血症基金会宣传册 – 西班牙PDF
- 常用术语词汇表
- 美国国家人类基因组研究所 – 遗传的条款会说话的词汇
- 从父母和看护人TIPS
资源指南 (美国)
中美. Newborn Screening Collaboratives
- National Coordinating Center for the Genetics and Newborn Screening Regional Collaborative Groups
- Region 1: The New England Genetics Collaborative
- Region 2: New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services (NYMAC)
- Region 3: Southeastern Regional Genetics Group, 公司. (SERGG)
- Region 4 Genetics Collaborative Family Resources Page
- Region 5: Heartland Regional Genetics & Newborn Screening Collaborative
- Region 6: The Mountain States Genetics Foundation
- Region 7: Western States Genetic Services Collaboratiive
医学出版物:
研究