PAF战士智慧大会议程,en

Nationwide Hotel and Conference Center

100 Green Meadows Drive South

Lewis Center, OH

Friday, 10月19日,,en,10月12日,,en,radio radio-498 label_first默认,,en

6:00PM-9:00PM Registration, Welcome Reception, Cash Bar*.

Edgewater Dining Room

Saturday, October 20th

7:00AM-8:15AM Buffet Breakfast for guests staying at the Hotel. 参展商建立,en

8:00AM-8:30AM Registration

Grand Ballroom 1

8:30AM-9:00AM Welcome – Opening Remarks and Introductions, Jill Chertow, President PAF

9:00AM-9:30AM “Family Panel”

9:30AM-10:00AM “PA Game”, Moderated by Keiko Ueda, MPH, RD

10:00AM-10:30AM Break/Visit Exhibitors

10:30AM-11:00AM “浅谈丙酸血症,,en,来自俄亥俄州阿米什国家的更新。,,en,奥莉维亚温格,,en: Update from Ohio’s Amish Country”, Olivia Wenger, MD

11:00AM-11:45AM “Natural History, Physiology, Microbiome and Biochemistry Studies of Propionic Acidemia”, Oleg Schchechlokov, MD

11:45AM-12:00noon Questions/Discussions

12:00noon-1:00PM Lunch/Group Photo

Grand Ballroom 3

1:00PM-1:30PM “Multi-Disciplinary Protocol for Liver Transplant in Propionic Acidemia”,

Grand Ballroom 1 Jodie M. Vento, MGC, LCGC

1:30PM-1:45PM Discussion/Questions

1:45PM-2:15PM “Nutritional Intake Recommendations for Propionic Acidemia: Evidence and Consensus Based SERN-GMDI Management Guidelines” Elaina Jurecki, MS, RD

2:15PM-2:30PM Discussion/Questions

2:30PM-3:00PM Break/Visit Exhibitors

3:00PM-3:30PM “Rationale behind changes in the nutritional management of PA/MMA” 艾里尼·马诺利,en, MD, 博士

3:30PM-3:45PM Questions/discussions

3:45PM-4:00PM “PROP Nutritional Guidelines Tool Kit Development” Keiko Ueda, MPH, RD

4:00PM-5:00PM Questions/Wrap Up

5:30PM-9:00PM Dinner/Networking Cash Bar*

Grand Ballroom 3

Sunday, October 21, 2018

7:00AM-8:30AM Breakfast for guests staying at the Hotel.

7:00AM -noon Run or cheer on the PA Runners in the Nationwide Children’s Hospital Marathon – stop by PAF table for information.

Children’s room will be open 10:30AM – 4:00PM in Grand Ballroom 4.

* Hotel guests over 21 in the room block will receive 2 drink tickets per night that can be used at the Cash Bar.

Speakers, topics, and time slots subject to change. Last updated 10/16/18