Amber B. – 21 years old – fevereiro atualizada 2017Amber B.

O âmbar é uma pessoa muito feliz, mesmo quando ela não se sentir bem, ela está sempre sorrindo. Ela adora música country; Luke Bryan é o seu favorito,,en,Ela será de terminar o colegial em maio,,en,e vai começar um programa de dia em um centro de treinamento local com seus amigos,,en,Os últimos anos sua saúde foi para cima e para baixo com ela lidar com c-diff,,en,mas ainda está a fazer progressos todos os dias,,en,Ela é uma pessoa incrivelmente forte, que me dá força a cada dia,,en. She will be graduating from high school in May of 2017 and will begin a day program at a local training center with her friends. The last few years her health has been up and down with her dealing with c-diff, TVP (coágulo de sangue) na perna, diabetes, traços metabólicos, e QT longo. But, através disso tudo ela é um lutador e se recuperou bem e rapidamente. Ela funciona a um nível de 4-5 anos de idade, but is still making progress every day. She is an amazingly strong person who gives me strength every day.

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A história de Amber acidemia propiônica Hi my name is Amber, I am 12 years old and I am in 7th grade at Chestnut Log Middle School. I have PA and I’m ok with it. My favorite thing to do is listen to country music. My favorite artist, right now, is Carrie Underwood. I love to sing with her. I love to eat anything that does not eat me first. My favorite foods are spaghetti with marinara sauce, brocolli, and french fries. I eat and drink everything by mouth, including my formula. I kinda like the flavor of it. I do have significant developmental delays, but I am very happy. I have cool hearing aids, they are blue and white, and I just started wearing glasses. Not too bad either. I have not been in the hospital for about 3 years now, I hate the hospital, but they give you cool stuff while you are there, like toys and games, my favorite thing to do in the hospital is play bingo, I am very good at it.

I have a little sister, Tiffany, she has PA too. To me that is great, because I am not alone, she has to drink the formula too and get sticks too. It makes me feel better to have her there with me at the doctor’s office.

God Bless You,
Amber B.
Georgia, United States