Patient Education and Support
- Propionic Acidemia Care Notebook – English PDF
- Propionic Acidemia Care Notebook – Spanish PDF
- Build Your Own Care Notebook – American Academy of Pediatrics
- Propionic Acidemia Foundation Brochure – English PDF
- Propionic Acidemia Foundation Brochure – Spanish PDF
- Glossary of Commonly Used Terms
- National Human Genome Research Institute – Talking Glossary of Genetic Terms
- TIPS from Parents and Caregivers
- Ask me 3 – recommendations for when you visit your doctor
- Bereavement Support
- Family Medical Leave Act
- Support Groups
- Transportation and Lodging
- Welcome to Holland by Emily Perl Kingsley
Resource Guides (United States)
- Centers for Medicare & Medicaid Services (Medicaid Waiver and Demostrations List)
- NICHCY – State Organization Search
U.S. Newborn Screening Collaboratives
- National Coordinating Center for the Genetics and Newborn Screening Regional Collaborative Groups
- Region 1: The New England Genetics Collaborative
- Region 2: New York-Mid-Atlantic Consortium for Genetic and Newborn Screening Services (NYMAC)
- Region 3: Southeastern Regional Genetics Group, Inc. (SERGG)
- Region 4 Genetics Collaborative Family Resources Page
- Region 5: Heartland Regional Genetics & Newborn Screening Collaborative
- Region 6: The Mountain States Genetics Foundation
- Region 7: Western States Genetic Services Collaboratiive
Medical Publications:
Research