Amber B. – 21 years old – actualizado en febrero 2017Amber B.

El ámbar es una persona muy feliz, aun cuando no se siente bien, ella siempre está sonriendo. A ella le encanta la música country; Luke Bryan is her favorite. She will be graduating from high school in May of 2017 and will begin a day program at a local training center with her friends. The last few years her health has been up and down with her dealing with c-diff, TVP (coágulo de sangre) en su pierna, diabetes, golpes metabólicos, y QT largo. But, a pesar de todo ella es un luchador y se ha recuperado bien y rápidamente. Ella funciona a nivel 4-5 años de edad, but is still making progress every day. She is an amazingly strong person who gives me strength every day.

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La historia de ámbar acidemia propiónica Hi my name is Amber, I am 12 years old and I am in 7th grade at Chestnut Log Middle School. I have PA and I’m ok with it. My favorite thing to do is listen to country music. My favorite artist, right now, is Carrie Underwood. I love to sing with her. I love to eat anything that does not eat me first. My favorite foods are spaghetti with marinara sauce, brocolli, and french fries. I eat and drink everything by mouth, including my formula. I kinda like the flavor of it. I do have significant developmental delays, but I am very happy. I have cool hearing aids, they are blue and white, and I just started wearing glasses. Not too bad either. I have not been in the hospital for about 3 years now, I hate the hospital, but they give you cool stuff while you are there, like toys and games, my favorite thing to do in the hospital is play bingo, I am very good at it.

I have a little sister, Tiffany, she has PA too. To me that is great, because I am not alone, she has to drink the formula too and get sticks too. It makes me feel better to have her there with me at the doctor’s office.

God Bless You,
Amber B.
Georgia, United States