My son Nicholas was born at 31 weeks gestational due to IUGR. He spent 85 long days in the NICU over at Strong Memorial Hospital in Rochester, NY. When Nicholas was born luckily he did not require any oxygen or serious medical attention, it was a few weeks later in the NICU when the newborn scan had come back with some “odd results.” With a second repeat to the newborn scan it was diagnosed my son had Propionic Acidemia. Although nothing else indicated that he had PA the Genetics doctor insisted we treat him accordingly to the results. As he was maturing in the NICU he had to go under surgery because he developed
He is now almost 11 months old and loves food! He has quite the appetite and will eat anything he may come across, which we keep a careful eye on. Developmentally doctors have no concerns as of now and is doing well. As his one year birthday approaches we have talked with his genetics dietician and will continue to increase his protein intake as his body allows. It’s been a roller coaster this first year but we are happy to be in a “safe” place now with Nicholas and his happy/silly personality!