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Lauren
I’m Lauren June D. and I also have Propionic Acidemia (just like my older sister, Jenna). I was diagnosed before I was born when my mom had an amniocentesis test done during her pregnancy. I am now 4 years old and attend Riley Park Preschool in Vancouver, BC Canada. I am fed solely via my gastrointestinal tube: 3x bolus feeds during the day and continuous feeding through a kangaroo pump in the night. When my mommy tried to teach me to eat by mouth, I hated it so much I developed a food aversion, so I never did learn to eat orally. I am in and out of the hospital often, where I developed a heart condition called Cardiomyopathy. Now, I have to take 6 different medications every day: Carnitine, Flagyl, Domperidone, Ranitidine, Digoxin & Metropolol. I receive Physiotherapy, Occupational Therapy and Speech Therapy from a service called Center for Ability because I am quite delayed in my overall development. They evaluated that I am functioning at an 18 month old level, but my mommy and daddy are not concerned because they know I have so much potential. We used to go to the hospital every 2 weeks for blood work, but now, my sister and I, only go once per month. Yahoo! You can e-mail me & my sister: jenren@shaw.ca if you want to learn more about us.
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