My name is Kaitlin and I am 7 yrs old and live in Huntington Beach, California. I was diagnosed with Propionic Acidemia when I was two weeks old. I got really sick just two days after birth and was in PICU for over two weeks until I was healthy enough to go home. I am going into special education second grade next year and am really excited! I eat through my g-tube four times a day and eat and drink a little by mouth. I love rice, chips, tortillas, gummy worms, popsicles, and most green veggies. I have a little sister named Maddy who doesn’t have PA and is my best friend. We love to ride our bikes together, go to the park, and play dress up. My mom and dad work really hard to get me to all of my therapies, school, and dr. appts. My mom Michelle talks to a lot of other mommies whose kids have PA and is always looking for new mommies to talk to.
If you have any questions about how I am doing or would just like to say “Hi” email us at:
Hope to hear from you soon!