POSSIBLE RESOURCES TO HELP WITH EXPENSES OF ATTENDING THE CONFERENCE
We know and understand that travel and lodging can be expensive to attend the conference. In an effort to help with costs, PAF waives the Conference Registration Fee for individuals with propionic acidemia and their immediate family. Lunch is included on June 9th and 10th. PAF has chosen this location with expense as a consideration and has negotiated a group room rate of $99 per night plus taxes at the Hyatt Regency Deerfield which includes breakfast for up to 4 people (good til May 9th) and rooms can accommodate up to 6 people. The PAF Board of Directors receives no compensation for our time and we each pay for our own travel and lodging.
We have compiled a list with links that may help. If you are aware of any other resources, please let us know so we can add them. You will want to start early as some have deadlines. Please contact us at email@example.com if you would like help with the process.
Some clinics provide grants to further the education of patients with chronic conditions. Check with your clinics as they may also have other suggestions.
CLUBS AND ASSOCIATIONS
It often pays to ask professional or charitable organizations. These large organizations often promote raising money for worthy causes, including those involving chronic illness. Here is a list of clubs and organizations to get you started. Keep in mind that these usually have a local chapter, and it’s best to deal with them at that level.
NATIONAL AGENCIES OR GROUPS
The ARC of the United States. Each chapter offers different programs/services, so you need to check your local chapter.
STATE AND/OR REGIONALLY LIMITED
All states have Councils on Developmental Disabilities, and some will fund conference travel. If your state is not listed below, you should take a minute to review your own state’s CDD page in case we have overlooked something. Here is a link to Developmental Disabilities Boards by state.
For states that are not listed below, if there was no specific link to a consumer investment/empowerment fund, it does not mean there is not such a fund in your state. Contact the council directly and inquire if they have available grants to help families & individuals with disabilities to attend conferences relating to that disability.
Arizona: The Prayer Child Foundation: http://www.prayerchild.org/submit_request.html.
Florida: Hannah & Friends
Illinois: If you are the parents or caretaker of a young child with disabilities, live in North or West Suburban Cook County, Du Page County, McHenry County, Kane County or Lake County and your child is under 6 years of age, Illinois StarNet has a Family Fellowship
New Jersey: Hannah & Friends
New York: Hannah & Friends
North Dakota: The State Council on Developmental Disabilities
Ohio: The Cuyahoga County Board of Developmental Disabilities Family Support Program may fund registration costs for conferences for families on topics related to the eligible individual. Prior approval is required for this program to fund training and conference attendance. The cost of these services will be deducted from your total annual program allowance. To check eligibility, email familysupport@cuyahogaBDD.org or by phone at 216-241-8230.
Rhode Island: Hannah & Friends
South Dakota: The state’s Council on Developmental Disabilities
Utah: Empowerment Fund
Please contact firstname.lastname@example.org with any questions.