Event Archives

2018 Genetic Metabolic Dietitians International (GMDI) Conference

Metabolic Nutrition: The World of Today and Tomorrow –   April 26-28, 2018, Orlando FL – Propionic Acidemia Foundation (PAF) partnered with the National Urea Cycle Disorders Foundation (NUCDF) in sharing an exhibition booth.   Jill Chertow represented PAF and had the opportunity to attend informative presentations, share information on PAF, and network with dietitians.

Society of Inherited Metabolic Disorders (SIMD) 40th Annual Meeting

March 11-14, 2018, San Diego, CA – Propionic Acidemia Foundation (PAF) partners with the National Urea Cycle Disorders Foundation (NUCDF) in sharing an exhbition booth. – See article from the PAF Spring 2018 Newsletter.

Evening with Genetics – Partners in Progress: Parents and Scientists Catalyze Research in Rare Disease – November 15, 2017,   Houston, Texas

Evening with Genetics 11-15-17

2013 PAF Education Conference- June 28-29, Denver, CO

2012 PAF Education Conference -June 30th, 2012, Middlefield, OH. 

Previously Held Events benefitting PAF:

Crop for PA – October, OH

Propionic Acidemia Foundation Giving Tuesday 2015

Team Talli’s Page

PAF Annual Appeal – The Joy of Giving, Please consider a donation to PAF this holiday season;  Firstgiving Page

Crop for PA, February 18th, 2013 – Lewis Center, OH – Raised $1800

Young Family Superbowl – January 2013  Raised $1030

Branch Family Superbowl – January 2013 Raised $1080

Jhalak Dreams 2012 – San Jose, CA – Raised $1500

Alan Duncan; September 8, 2012; UK – raised $2055

PAF Education Conference 2010 Silent Auction/Raffle, Chicago, IL, August 2010 – Raised about $3200

Beef and Beer to Benefit Propionic Acidemia, Philadelphia, PA – Saturday, June 12, 2010 7:30 – 10:30 pm: Raised over $9000

Naperville Lights of Love 2009, Naperville, IL: – For each $1 donated to the PA Foundation this season, a light will be added to the Smith house in honor of their daughter, Talli, who has PA.

Jewel Osco Shop & Share Days – IL –November 16-18,2009 – raised $24.77; August 24-26,2009 – raised $52.53; September 14-16,2009 – raised $27.41

Lights of Love – Illinois vs. Ohio –For every $1 donation to Propionic Acidemia Foundation for Lights of Love, a bulb will be added.  Thanks to another successful Lights of Love Campaign – over $4,000 was raised. (Illinois received $730 for Lights of Love and Ohio received $3328).

6th Annual Propionic Acidemia Fundraiser sponsored by Squadron 21 Sons of the American Legion – April 12, 2008, Bath, Maine 

Lights of Love 2007 Columbus, Ohio

Crop-A-Thon – February 18th

Indian-Fusion Dance Showcase – May 12, 2007  San Jose, CA See information on event

Sons of the American Legion Annual Potluck Dinner -April 2007

Bowling for a Cure – March 10, 2007, Bolingbrook, IL 2 pm – 5pm

Archivers Crop Night – February 22, 2007;  Ohio – for more information, check out www.gwenforacure.com

Goodsearch Charity of the Day – January 5, 2007;  On January 5th, Propionic Acidemia Foundation was chosen at the charity of the day.  Use this link:  http://www.goodsearch.com/?charityid=499183 to go to goodsearch and goodsearch will donate 1 cent for each search.

Lights of Love, December 2006 Columbus, Ohio

PKU Organization of Illinois Annual Meeting 2006 – The Links that Bind Us Together (PKU and Allied Disorders) Saturday, November 4, 2006, Medina, IL ; Panel participation by Jill Franks on behalf of PAF and families with PA.

Brandon’s 8th Birthday Party-Thank you for donating your gifts to PAF.

Reach for the Stars – 2006!!!   Sons of the American Legion Fundraiser for PA –April 8, 2006   Click here for  photos.

Tinicum Elementary School 3rd Annual Talent Show

Thank you for donating your proceeds to help find a cure for PA!!!

Ryan Franks Raising Money with His PAF Can!  Winter 2006  Click Here

PAF Fundraising Night – UK 2002-Raised about £4K in honor of Eilidh

 

Media Coverage:

Bikers help youngster with rare disease, Connecticut Post, Melvin Mason, 8/26/2008