Newsletter Committee is responsible for compiling, editing,  and distribution of newsletters.

Committee members: Julie Howard, Jennifer Mouat, Toni McKinley and Dave McKinley

Fundraising Committee is responsible for addressing fundraising.

Fundraising Chair:  Amy Rosenson, Shayna Rosenson

Research Committee is responsible for distributing information to current and potential researchers on grant opportunities.

Committee members:  Jill Chertow, Brittany Dague

Outreach Committee is responsible for reaching out to families and medical providers.


Email for more information about joining a committee.

We are very appreciative for the work of Mel Russell and Angela Waits on maintaining and updating the PAF website.