Mission: The Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.
Funding Research : (more specifics on the grants can be found on the research pag:
2011/2012 - $32,000 new grant to Sarah Venezia and Dr. Jan Kraus
$27,000 new grant to Dr. Marisa Cotrina
$27,000 new grant to Dr. Andrea Gropman
$15,500 new grant to Dr. Kimberly Chapman and
Dr.Cusmano-Ozog
2010/2011 - $28,000 continuation grant to Dr. Jan Kraus
Annual Report year ending 7/31/11
2009/2010 - $20,000 new grant to Dr. Michael Barry
$20,000 continuation grant to Dr. Jan Kraus
$30,000 continuation grant to Dr. Jan Kraus
Annual Report year ending 7/31/10
2008/2009 - $29,381 new grant to Dr. Kimberley Chapman
$30,000 continuation grant to Dr. Jan Kraus
$20,000 continuation grant to Dr. Jan Kraus
Annual Report year ending 7/31/09
2007/2008 - $40,000 new grant to Dr. Jan Kraus
$30,000 new grant to Dr. Jan Kraus
$12,300 continuation grant to Dr. Michael Barry
Annual Report year ending 7/31/08
2006/2007 - $30,000 new grant to Dr. Jon Wolff
$29,996 continuation grant to Dr. Jan Kraus
$22,500 continuation grant to Dr. Michael Barry
Annual Report year ending 7/31/07
2005/2006 - $25,000 new grant to Dr. Jan Kraus
$15,000 continuation grant to Dr. Michael Barry
Annual Report year ending 7/31/06
2004/2005 - $25,000 continuation grant to Dr. Michael Barry
2003/2004 - $10,000 new grant to Dr. Michael Barry
2001/2003 - Raised over $96,000 for UT Southwestern Medical Center
studies by Dr. Toru Miyazaki
For more information on research, click here: research.
Providing Information and support
Attend and Exhibit at National Conferences
Website - links to Parent Guides, nutritional information,
research publications, state resources, etc...
Newsletter sent out twice a year
Annual PA Family Day give families an opportunity to spend time with
other families that are affected by PA in a warm, casual environment.
On line Email Discussion List gives families a chance to ask questions,
give updates, and get support.
Care Notebook for families that can be downloaded
Toll free phone number (US)
Vision: To to create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.
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Board of Directors and Officers
Please Email paf@pafoundation.com for more information about joining a committee.
The Propionic Acidemia Foundation would like to thank our prior founding board members Janice S. Boecker (2003-2006, 2008-2010), Susan Millett (2003-2004), Ruth Milne (2003-2006), and Kathy Stagni (2003-2005) for their time and dedication to the foundation.
We would also like to thank Michelle Burns (2005-2008) and Jennifer Mouat (2008-2009) for their time and dedication.
Thank you to Dr. Stuart K. Shapira, MD, PhD (2003-2005) and James Leonard, Ph.D, FRCP (2003-2008) for sitting on our medical advisory board. Their dedication to the field of metabolics has been a great value to the PAF.
