Announcements

Deerfield HS Chest 2016 Raises $168,332.35 for PAF

Last September, PAF learned the amazing news that our organization was chosen as the beneficiary of Deerfield High School’s yearly School Chest fundraising campaign! This is a humbling honor, especially knowing the many incredible and worthy charities that were considered this year!

We know that part of the reason why PAF was chosen is because of Jordan’s connection to DHS. To honor Jordan and other children who have Propionic Acidemia, the students, faculty and community of DHS are dedicated to spreading awareness and raising money for PA.  All event information is on the School Chest 16 website!!!

Grant Applications

Due October 1, 2017.

Spring 2017 Newsletter

The Spring 2017 Newsletter articles are due by February 15th.     Please update your contact information by filling out the registration form.   PAF is also updating our medical providers list.  If your provider would like to receive the newsletter, please email us at paf@pafoundation.com

PA International Registry

The PA International Registry provides a way for PA patients and families worldwide to improve the understanding of the disorders and accelerate research by reporting information about how the disorder affects them.  The Registry is itself an IRB-approved research project and the data collected will help characterize the condition of people living with PA. You can find out more on www.paregistry.org

Pounding the Pavement for PA

Join the PAF Pounding the Pavement for PA team or start your own!  Run in any race, around your block, or become a “virtual runner” Contact Brittany Smith for more information at paf@pafoundation.com .  Check out events to follow our progress.