PAF Warrior Wisdom Conference Agenda
Nationwide Hotel and Conference Center
100 Green Meadows Drive South
Lewis Center, OH
Friday, October 19th
6:00PM-9:00PM Registration, Welcome Reception, Cash Bar*.
Edgewater Dining Room
Saturday, October 20th
7:00AM-8:15AM Buffet Breakfast for guests staying at the Hotel. Exhibitor Set-up
Grand Ballroom 1
8:30AM-9:00AM Welcome – Opening Remarks and Introductions, Jill Chertow, President PAF
9:00AM-9:30AM “Family Panel”
9:30AM-10:00AM “PA Game”, Moderated by Keiko Ueda, MPH, RD
10:00AM-10:30AM Break/Visit Exhibitors
10:30AM-11:00AM “Plain Talk about Propionic Acidemia: Update from Ohio’s Amish Country”, Olivia Wenger, MD
11:00AM-11:45AM “Natural History, Physiology, Microbiome and Biochemistry Studies of Propionic Acidemia”, Oleg Schchechlokov, MD
12:00noon-1:00PM Lunch/Group Photo
Grand Ballroom 3
1:00PM-1:30PM “Multi-Disciplinary Protocol for Liver Transplant in Propionic Acidemia”,
Grand Ballroom 1 Jodie M. Vento, MGC, LCGC
1:45PM-2:15PM “Nutritional Intake Recommendations for Propionic Acidemia: Evidence and Consensus Based SERN-GMDI Management Guidelines” Elaina Jurecki, MS, RD
2:30PM-3:00PM Break/Visit Exhibitors
3:00PM-3:30PM “Rationale behind changes in the nutritional management of PA/MMA” Irini Manoli, MD, PhD
3:45PM-4:00PM “PROP Nutritional Guidelines Tool Kit Development” Keiko Ueda, MPH, RD
4:00PM-5:00PM Questions/Wrap Up
5:30PM-9:00PM Dinner/Networking Cash Bar*
Grand Ballroom 3
Sunday, October 21, 2018
7:00AM-8:30AM Breakfast for guests staying at the Hotel.
7:00AM -noon Run or cheer on the PA Runners in the Nationwide Children’s Hospital Marathon – stop by PAF table for information.
Children’s room will be open 10:30AM – 4:00PM in Grand Ballroom 4.
* Hotel guests over 21 in the room block will receive 2 drink tickets per night that can be used at the Cash Bar.
Speakers, topics, and time slots subject to change. Last updated 10/16/18