Warrior Wisdom Conference

Agenda (PDF)

Thursday, June 8th






Registration Hyatt Atrium

For first time attendees, a PAF board member will meet with families to help you get the most from the conference (email [email protected] to sign up).

Welcome and refreshments:  Opportunity for families, healthcare providers and researchers to meet each other and exchange information in an informal setting. Children are welcome.

Exhibitor Set-up. Leclaire Ballroom

Friday, June 9th

6:00AM-8:15AM Breakfast for guests staying at the Hyatt.  (Choose from the buffet or off the Restaurant menu).   Breakfast passes distributed by the hotel at check-in.
8:00AM-8:30AM Registration and Exhibitor Set-up/Visit Exhibitors  Leclaire Ballroom
8:30AM-8:45AM Welcome – Opening Remarks, Jill Chertow Franks, President PAF
8:45AM-9:30AM “Propionic Acidemia: An Overview”, Barbara K. Burton, M.D.
9:30AM-10:15AM “Different approaches to dietary management of methylmalonic and propionic acidemia”, Irini Manoli, M.D., Ph.D.
10:15AM-10:30AM Questions/Discussions
10:30AM-10:45AM Coffee Break/Visit Exhibitors
10:45AM-11:15AM “SERC-GMDI PROP/PA Nutritional Guidelines: Consumer summary and FAQs”,  Keiko Ueda, MPH, RD and Amie Thompson, RD, LD, CNSD
11:15AM-12:00noon “Propionic Acidemia Protocol: A Progress Report”, Oleg A. Shchelochkov, M.D.
12:00noon-1:00PM Group Photo/Lunch Atrium
1:00PM-1:45PM “Treatment protocol and outcomes with the Amish/Mennonite variant”,                                 D. Holmes Morton, MD.
1:45PM-2:30PM “Translational approach to the study of Propionic Acidemia”,                                              Charles P. Venditti, M.D., Ph.D.
2:30PM-2:45PM Discussion/Questions
2:45PM-3:00PM Snack Break – Visit Exhibitors
3:00PM-3:45PM “Enzyme replacement and chaperone studies”, Jan P. Kraus, Ph.D.
3:45PM-4:00PM “Short-term Outcome of N-Carbamylglutamate in the Treatment of Acute Hyperammonemia”, Nicholas Ah Mew, M.D.
4:00PM-4:15PM Questions/Discussion
4:15PM-5:00PM Afternoon Breakout Group Topics:  Nutrition & G-tube Feeding, Heather Bausell, RD, LDN; Genetics – Prenatal Diagnosis, PGD, Katherine H. Kim, MS, Genetic Counselor; Research Participation/Visit Exhibitors,  

Healthcare Providers and Researchers will be able to continue with discussion.

5:00PM Adjourn

Saturday, June 10th, 2017

6:00AM-8:30AM Breakfast for guests staying at the Hyatt. (Choose from the buffet or off the Restaurant menu). Breakfast passes distributed by the hotel at check-in.
8:30AM-9:00AM PAF Updates
9:00AM-9:30AM “New mechanisms of cellular pathogenesis in Propionic Acidemia”,                                 Hilary J. Vernon, M.D., Ph.D.
9:30AM-10:15AM “Liver transplantation in Propionic Acidemia”, Gerard Berry, M.D.
10:15AM-10:45AM Break – Visit Exhibitors
10:45AM-11:15AM Family Panel
11:15PM-12noon Questions/Discussion Wrap-up
12noon-1:00PM Lunch Atrium

Speakers, topics, and time slots subject to change

Updated 5/26/2017