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The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals. Join Us in our vision to create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.
NEW: Survey of Health Status and Complications Among Propionic Acidemia Patients Registered with the Propionic Acidemia Foundation:
For more information on the Study, Click here for the Study Flyer
To participate,
Click here to download the PA Questionnaire. (Writeable Word document)
Click here for a PDF to print out
NEW: Propionic Acidemia Founation awards Dr Jan Kraus of University of Colorado at Denver and Health Sciences Center an extension grant of $30,000 for his study title:
"Crystallization and Structure Determination of Human Propionyl-CoA Carboxylase" (see Reseach page for more info)
NEW: Propionic Acidemia Foundation awards Dr. Kimberly Chapman of Children's Hospital of Philadelphia a grant for $29,381 for her study titled:
"Gene Expression Profiles of Patients with Propionic Acidemia and their Carrier Parents" (see the Research page for more info)
NEW: The Spring Newsletter is now available on-line on the Sites of Interest Page.
4th Annual Propionic Acidemia Foundation Family Day- Saturday, July 25th, 2009, at the Koehl home in Burlington, KY. Click here for more information in English. Click here for more information in Spanish.
Jewel Osco Shop & Share Days - Propionic Acidemia Foundation will hold a Shop & Share fund-raising program on 8/24/2009, 8/25/2009 and 8/26/2009 at all Jewel-Osco Stores. By shopping at Jewel-Osco on one of those days, 5% of the total purchases, excluding tax, will be donated by Jewel-Osco to the organization. Propionic Acidemia Foundation will use the money generated by their Shop & Share to help fund research to find better treatments and a cure for Propionic Acidemia. Anyone interested in helping by shopping at Jewel-Osco on those dates will need a "Shop and Share Identification Slip" and should contact Jill franks at 877-720-2192 or paf@pafoundation.com to obtain a slip before shopping. Jewel-Osco stores are located in Illinois, Indiana and Iowa.
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