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The Propionic Acidemia Foundation is a non-profit organization dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals. Join Us in our vision to create a future where Propionic Acidemia can be prevented and any affected individual can be cured and live a productive life.
NEW: Registration is now open for the 2012 PAF Education Conference - Saturday, June 30th, Middlefield, OH.
NEW: Spring 2012 Newsletter now available on Sites of Interest.
NEW: PAF Exhibited and Attended the Society for Inherited Metabolic Disorders 2012 Annual Meeting in Charlotte, NC March 31 - April 3rd.
NEW: 3 Research Grants awarded:
$27,000 Grant awarded to Andrea Gropman, M.D., FAAP, FACMG, FAAN for "Biomarkers for Neurological Injury in PA"
Recruitment Flyer - study is now recruiting, download flyer for more information
$27,000 Grant awarded to Marisa Cotrina, PhD for project titled:
"The impact of pa on brain astrocytes: an in vitro model to test mitochondrial therapy in PA"
$15,500 Grant awarded to Kimberly Chapman, M.D. Ph.D and Kristina Cusmano-Ozog for project titled "Is there energy deficiency in Propionic Acidemia".
NEW: PA Consensus Meeting Publishes 5 articles on PA: Click this link.
NEW: Happy Holidays!!! Our 2011 Annual Mailer has been sent out. Please let us know if there is anyone you would like us to send to on your behalf.
Annual Mailer Letter Donations can be made on-line through PayPal or Google Checkout or by mailing a check to Propionic Acidemia Foundation at the address below. Holiday card inserts can be found on the "How Can I Help?" page. Thank you for your continued support. The Annual appeal has already raised over $10,000.
NEW: Fall 2011 Newsletter is available on the Sites of Interest Page. Archived newsletter are also available on the Sites of Interest page. Please submit stories by March 30th for the Spring 2012 Newsletter.
NEW: Join the PAF Pounding the Pavement for PA team or start your own! Run in any race, around your block, or become a "virtual runner" Contact Brittany Smith for more information at paf@pafoundation.com . Check out events to follow our progress. Congrats, we just passed $14,000 in donations.
NEW: August 2010 PAF Education Conference now available This is a great resource for anyone interested in learning more about Propionic Acidemia. More information on this project can be found on Page 7 of the Spring 2011 Newsletter.
Click to view!!!
8/25/2011: Propionic Acidemia Foundation awards Sarah Venezia and Dr Jan Kraus of University of Colorado at Denver and Health Sciences Center an new grant of $32,000 for the study titled: "Enzyme Replacement Therapy for Propionic Acidemia)
Feb 27-Mar 2, 2011 PAF sponsored and exhibited at the 2011 SIMD Annual Meeting in Pacific Grove, CA.
Jan 28-30, 2011. PAF participated in Consensus Meeting on Propionic Acidemia organized by CNMC.
10/2010: Propionic Acidemia Foundation awards Dr. Jan Kraus of University of Colorado at Denver and Health Sciences an extension grant of $28,000 for his study titled: ""Genotype-phenotype correlations in propionic acidemia"
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